Comments on: LJGIRL and SARA

By: Aron Freeman

Aron Freeman — Sat, 02 Oct 2004 02:54:23 +0000

I am Italian and very opinionated and brassy at
times. This sometimes comes across strongly. I just wish
that more people would comprehend the INABILITY to
judge and control with PWS. It is SO different than
what we consider a person without PWS. I researched
the subject because when I first saw LJ’s posting
that she was a PWS client I thought wait a minute - "I
remember this being dangerous to a PWS patient." If
someone had a lets sayyyy hmmmmmm for instance a severe
blood clot or a heart problem that if they had surgery
it would endanger them in a very severe way….would
we say GO FOR IT? Would you? Would you say then that
well you are at a high risk now so go for it? There
are things that keep people from being WLS
candidates! It just isnt as easy as walking in saying ok I am

100+ overweight- lets do this- that is exactly why
there is preop testing and the such. We all know this.
I am just terrified that the dysfunction in her
hypothalamus will be such a danger to her postop. Altho I pray
that she has NO problems and ends up being a happy
healthy 135 lbs in a year or so…I just am worried and
that has gotten me ridiculed and b**ched at profusely.
I dunno people- what lengths will we go to to be
thin and healthy!? How much do we endanger ourselves?
And I do know that I tried everything - LJ has sat
here and vented about her parents eating around her
all her favorite foods and how it drives her
insane—-what is going to happen postop??

Ice

By: Neva Marjory

Neva Marjory — Fri, 01 Oct 2004 20:15:07 +0000

Well stated, Dottie, and my point exactly. I
appreciate the info that Ice took the time and trouble to
obtain, but again, I have heard that extremely obese
people WITHOUT PWS have also a difficult time in telling
if they are hungry or full. I know I do. And I have
heard MANY stories of people WITHOUT PWS who have
consumed too much and have busted their staple lines. I
just think if this is something that LJ has decided to
do, then she has that right, and yes, I think that
follow up is essential–not just with someone in a
special situation like LJ, but with all who have WLS.
Without it, I am sure that the success rate goes WAAYYYY
down. I just don’t see the difference in someone with
PWS, (without severe developmental impairments)and
those who have a horrible eating disorder that causes

them to be morbidly obese.

Also, I don’t mean
to hurt you,Ice, but I have noticed that sometimes
you like to "stir it up", if you know what I mean.
You have to be aware at how people are going to react
to your STRONG suggestions. When someone seems, like
I said, a "know it all" it can really cause
resentment. I have not only seen it here, but in past posts
in other clubs I belong to. I would like you to
think of this as constructive criticism, however, I
have a feeling you won’t take my opinion well. That’s
Ok, I just felt like saying something about it. Take
it how you will and move on.

Good luck still
to you LJ and to you as well, Ice and
Dottie.

–Sara–

By: Neva Marjory

Neva Marjory — Fri, 01 Oct 2004 14:54:20 +0000

Ya know Ice,
If people with PWS can learn to
control binging, why not also use wls as for successful
weight-loss? Obviously at such high weights the chances for
sudden death would equal if not exceed the chances of
death due to complications if the patient has good
follow-up and the behavior modification (control therapy).
It would just seem to me that, if they can learn
control , why not incorporate the two tools together?

Just think. Diets have a 3% success rate for the
normal person, what are the stats for someone with PWS?
What is the quality of life like for a person with
PWS?

Dottie
Pre-op DS